Author: tbb17001
Holiday Season Celebration & Open House
HOLIDAY SEASON CELEBRATION & OPEN HOUSE
Saturday, December 7, 2019 from 11:00a.m. – 2:00 p.m.
NORD Headquarters, 55 Kenosia Avenue, Danbury, CT 06810
Connecticut Rare Action Network invites all rare disease patients, caregivers, family members, patient organizations, healthcare professionals and elected officials to celebrate the holiday season and connect with rare disease community members here in Connecticut.
All are welcome. This is a family friendly event. Refreshments will be served.
Introductions & open discussion begins at 12:00p.m.
Please RSVP to Kristen Angell at kangell@rarediseases.org or 203.304.7251
Walk-ins welcome too!
Rare Disease Forum
RARE DISEASE FORUM
at Hospital for Special Care, 2150 Corbin Avenue, New Britain, CT 06503
Wednesday, December 18, 2019 from 6:00p.m. – 8:00p.m.
If you, a family member, or a friend has a rare disease, please join us for an open discussion about the challenges many families face caring for a loved one and a chance to meet other families dealing with a rare disease.
Health care providers, researchers, and representatives from state agencies, academic centers, industry, and the Connecticut General Assembly (CGA) are also being invited to participate in our discussion about available state resources for rare disease families, and state legislation (or policy changes) needed to improve the lives of those living with a rare disease.
For more information or to RSVP email lesley.bennett@rarediseases.org
or visit RareCT.org
Rare Awareness Event in Torrington – Rare Disease Discussion
NYS Regional Cytogenetics Meeting
Movie Screening!
UConn Institute for Systems Genomics and the Health Care Genetics Professional Science Master’s Degree Program will be hosting a screening of ANYA – a genetic mystery movie.
The screening will take place on Monday October 21, 2019 at 5:30 pm in the Student Union Theater.
Stay tuned!
More Details to Follow