HOLIDAY SEASON CELEBRATION & OPEN HOUSE

Saturday, December 7, 2019 from 11:00a.m. – 2:00 p.m.
NORD Headquarters, 55 Kenosia Avenue, Danbury, CT 06810

Connecticut Rare Action Network invites all rare disease patients, caregivers, family members, patient organizations, healthcare professionals and elected officials to celebrate the holiday season and connect with rare disease community members here in Connecticut.

All are welcome. This is a family friendly event. Refreshments will be served.
Introductions & open discussion begins at 12:00p.m.

Please RSVP to Kristen Angell at kangell@rarediseases.org or 203.304.7251
Walk-ins welcome too!

RARE DISEASE FORUM

at Hospital for Special Care, 2150 Corbin Avenue, New Britain, CT 06503
Wednesday, December 18, 2019 from 6:00p.m. – 8:00p.m.

If you, a family member, or a friend has a rare disease, please join us for an open discussion about the challenges many families face caring for a loved one and a chance to meet other families dealing with a rare disease.

Health care providers, researchers, and representatives from state agencies, academic centers, industry, and the Connecticut General Assembly (CGA) are also being invited to participate in our discussion about available state resources for rare disease families, and state legislation (or policy changes) needed to improve the lives of those living with a rare disease.

For more information or to RSVP email lesley.bennett@rarediseases.org

or visit RareCT.org