
Event Notices
Professional Science Master’s Virtual Fair April 17, 2020
Holiday Season Celebration & Open House
HOLIDAY SEASON CELEBRATION & OPEN HOUSE
Saturday, December 7, 2019 from 11:00a.m. – 2:00 p.m.
NORD Headquarters, 55 Kenosia Avenue, Danbury, CT 06810
Connecticut Rare Action Network invites all rare disease patients, caregivers, family members, patient organizations, healthcare professionals and elected officials to celebrate the holiday season and connect with rare disease community members here in Connecticut.
All are welcome. This is a family friendly event. Refreshments will be served.
Introductions & open discussion begins at 12:00p.m.
Please RSVP to Kristen Angell at kangell@rarediseases.org or 203.304.7251
Walk-ins welcome too!
Rare Disease Forum
RARE DISEASE FORUM
at Hospital for Special Care, 2150 Corbin Avenue, New Britain, CT 06503
Wednesday, December 18, 2019 from 6:00p.m. – 8:00p.m.
If you, a family member, or a friend has a rare disease, please join us for an open discussion about the challenges many families face caring for a loved one and a chance to meet other families dealing with a rare disease.
Health care providers, researchers, and representatives from state agencies, academic centers, industry, and the Connecticut General Assembly (CGA) are also being invited to participate in our discussion about available state resources for rare disease families, and state legislation (or policy changes) needed to improve the lives of those living with a rare disease.
For more information or to RSVP email lesley.bennett@rarediseases.org
or visit RareCT.org
Rare Awareness Event in Torrington – Rare Disease Discussion
A RARE Awareness event is taking place at the Torrington Senior Center on November 7 from 6-7:30pm. Please attend for a discussion of rare diseases and the challenges many families face helping a loved one with a complicated medical condition.

NYS Regional Cytogenetics Meeting
Movie Screening!

UConn Institute for Systems Genomics and the Health Care Genetics Professional Science Master’s Degree Program will be hosting a screening of ANYA – a genetic mystery movie.
The screening will take place on Monday October 21, 2019 at 5:30 pm in the Student Union Theater.
Stay tuned!
More Details to Follow
Genomics, Big Data and Data Science in Public Health
Please join us for an exciting seminar on Big Data and how it will affect public health science! The seminar will be hosted by the CDC at CDC Chamblee Campus, Building 107, and does require a free registration. Note that this discussion is viewable through Skype if the location is too distant. A link to the CDC page on the talk is posted below.